Privacy policy.

Dementia Association for Awareness and Support has implemented this Privacy Policy so that you understand how we collect, use, disclose and protect your personal information, and how you can access, update, and otherwise manage this personal information. We are committed to protecting the privacy of our members, partners, users, and visitors. This Privacy Policy applies to your use of our website, http://www.dementiaassociation.ca/, and our services, including those we may provide in relation to the software platform, TUSK™ , and our podcast, Life with Dementia (collectively, the “Services”). From time to time, we may offer services through external merchants. If you chose to use these services, please refer directly to the privacy policies of these merchants.

We reserve the right to change our Privacy Policy from time to time by posting the changes here. When we make a chance to our Privacy Policy, we will update the “last updated” date at the top of this Privacy Policy. If we make any changes to this Privacy Policy that materially affect your rights, we will provide you with notice by prominently posting on our website, or via email, or both. Changes to our Privacy Policy are effective when they are posted here. Your use of our website or Services after we have made changes to our Privacy Policy (and we have notified you, when required) will mean that you have accepted those changes.

By using our website or Services, you accept the terms of this Privacy Policy. If you do not agree to the terms of this Privacy Policy, please do not use our website or Services.

Personal information is information about an identifiable individual. Personal information does not include information that cannot be attributed to an identifiable individual, e.g. information of an aggregate or anonymous nature, which is considered non-personal information.

We only collect, use, disclose, and store your personal information after obtaining your consent, except where otherwise required or permitted by law. We will obtain your express consent prior to or when collecting, using, or disclosing your personal information for any purpose not described in this Privacy Policy, or for a purpose that was not identified to you nor reasonably expected at the time of collection, unless we are required or permitted by law not to obtain your consent.

Generally, we must obtain express consent when the personal information being collected, used or disclosed is sensitive (e.g. financial information, such as a credit card number), when the collection, use or disclosure is outside of your reasonable expectations, and/or when the collection, use or disclosure creates a meaningful residual risk of significant harm to you.

We may rely on your implied consent in certain circumstances, after taking into account factors such as the sensitivity of the personal information and your reasonable expectations.

We will limit the collection, use, and disclosure of your personal information to only that which is necessary for the purposes identified, unless you have otherwise consented, or when such collection, use, and/or disclosure is required or permitted by law.

You can refuse to provide your personal information. However, your refusal to provide personal information may prevent you from using our website or Services.

We need to collect certain information from you in order to provide you with our website or Services. We collect personal information and non-personal information from you when you provide it to us or when you use or interact with our website or Services. 

We may collect various types of personal information from you depending upon how you interact with us or use our website or Services. This may include your first and name, your email address, your mailing address, your telephone number, any details about the person you are providing care for that you choose disclose, and your purchase or financial information, e.g. credit card number. 

You may provide us with personal information and non-personal in several ways, including for example when you visit our website or use our Services, when you create an account on our TUSKTM platform, or when otherwise using our Services, including when you correspond or interact with us in any way, online or offline.

Our Services may use cookies, which are small text files that are stored on your device by the browser. Some cookies remain stored on your device until you delete them. Cookies make it easier for us to recognize your browser when you next visit us. If this is against your preference, you can set your browser so that it informs you when cookies are set and only allows this in certain cases. Deactivating cookies may limit the functionality of our Services.

Our website may, from time to time, contain links to and from social media platforms or other websites. You may choose to connect to us through a social media platform, such as Twitter, and when you do, we may collect additional information from you (including personal information), such as your screen name, through the social media platform.

Social media platforms and other websites may also collect information from you. We do not have control over (nor do we assume responsibility for) the collection, use, or disclosure practices of social media platforms or other websites. Please review their privacy policies and practices, including data security practices, before using these social media platforms or other websites.

We only use your personal information to fulfill the purposes for which it was collected in accordance with this Privacy Policy, unless otherwise consented by you in advance, or as may be required or permitted by law. 

We use personal information to provide you with our website and Services including without limitation to administer membership and provide member services to you, register you for events, and allow you to purchase various products or services including document certification.  We also use personal information to maintain and improve our website and Services, including managing your account on our TUSK™ platform, communicate with you with respect to updates or other information related to the Services, respond to your requests and communications, respond to legally binding demands from law enforcement, regulatory authorities or other third parties, and to comply with applicable law.  

We may use non-personal information for any legitimate business purpose, including the provision of our website and/or Services.

Except as set forth in this Privacy Policy, or as required or permitted by law, we do not disclose your personal information to any parties other than our service providers and our affiliates, and their respective directors, officers, employees, agents, consultants, advisors or other representatives who or that have a need to use your personal information to provide or improve our website or Services, to legal or regulatory authorities, or for other purposes for which you have provided your consent. By using our website or Services, you consent to such disclosure.

We do not sell or rent your personal information. When we disclose your personal information to a third party, we will enter into an agreement with such third party to protect the confidentiality of your personal information and to ensure your personal information is only used to provide the website and/or Services or otherwise help us with the uses described in this Privacy Policy.

The following are particular circumstances in which we may disclose your personal information without obtaining your further consent. By using our website or Services, you consent to the following disclosures: 

  1. to any third party service providers to help us with the uses described in this Privacy Policy;
  2. to other parties where we are under a duty to disclose your personal information in order to comply with any applicable legal obligation, including if disclosure is required to comply with a subpoena, warrant, court order, or rules of the court relating to the production of records;
  3. for the purpose of collecting a debt you owe;
  4. if the disclosure is made to another organization and is reasonable for the purposes of investigating a breach of an agreement or a contravention of the laws of Canada or a province that has been, is being or is about to be committed and it is reasonable to expect that disclosure with the knowledge or consent of the individual would compromise the investigation;
  5. if the disclosure is made to another organization and is reasonable for the purposes of detecting or suppressing fraud or of preventing fraud that is likely to be committed and it is reasonable to expect that the disclosure with the knowledge or consent of the individual would compromise the ability to prevent, detect or suppress the fraud;
  6. where we transfer or are considering the transfer of control of our business, including the website and Services, to a third party acquirer of all or substantially all of our assets, including our rights and obligations relating to our website and Services, to a third party. The third party may continue to retain and use the personal information that you provided to us. We will act in a reasonable manner, including by contractual or other means, to ensure that the third party agrees to similarly be bound by this Privacy Policy or a privacy policy that provides substantially similar measures to those employed by us to protect the privacy and security of your personal information and to similarly comply with applicable privacy legislation with respect to your personal information; 
  7. where we merge, consolidate, or amalgamate with a third party, the merged, consolidated, or amalgamated entity may continue to use and disclose your personal information. We will use our best efforts to ensure that the merged, consolidated, or amalgamated entity agrees to similarly be bound by this Privacy Policy or a privacy policy that provides substantially similar measures to those employed by us to protect the privacy of your personal information and to similarly comply with applicable privacy legislation with respect to your personal information; and
  8. if otherwise required or permitted by law.

We disclose non-personal information to third parties as reasonably necessary to meet our business needs. 

When you disclose personal information or otherwise publicly interact with other users on the website or the Services (e.g. on our TUSK™ insights community), such personal information may be viewed by all users. We are not responsible for any use these users may make of the personal information you disclose.

We do not sell or trade any personal information with third parties.

We will only retain your personal information for as long as is reasonably required to fulfill the purposes for which it was collected, including compliance with legal requirements. We may retain non-personal information for as long as we have a business need to do so.

We have taken appropriate measures to ensure the security and confidentiality of your personal information. For example, firewalls, encryption, intrusion detection, restricted access to records and to equipment, including computers.  There is some storage and maintenance of personal information in the cloud, through AWS.

We try our best to safeguard personal information once we receive it, but no transmission of data over the Internet or any other public network can be guaranteed to be completely secure. If you suspect an unauthorized use or security breach that compromises the security of your personal information, please contact our Privacy Officer as soon as possible.

All of our service providers and contractors are contractually obligated to employ appropriate data security measures with respect to your personal information and to collect/use/disclose/retain it only within the scope required for the provision of our website or Services. The contractors we enter into agreements with will use your personal information if required to perform their respective services in support of our provision of the website or Services to you.

On your reasonable written request, we will provide you, not later than thirty (30) days from our receipt of your request, or such additional time as required by law, with access to or information about your personal information (if any) under our custody or control, and the names of persons to whom, and any circumstances in which, your personal information has been and is being disclosed by us. You must provide sufficient information in your request to allow us to verify your identity and identify the personal information you are seeking. Your request should include your name, contact details, membership number (where applicable), and the specifics of your request

If you request a copy of your personal information and the personal information can reasonably be reproduced, we will provide you with a copy of the personal information, or, if applicable, we will give you reasons for any delay in providing a copy of the requested personal information. All requests may be subject to minimal costs, in accordance with applicable privacy legislation.

We reserve all rights not to disclose personal information to you in response to your request, in whole or in part, in certain circumstances required or permitted by law, including but not limited to where the personal information is protected by any legal privilege, the disclosure of the personal information would reveal our confidential commercial information or that of our third party service providers, the disclosure could reasonably be expected to threaten the safety or physical or mental health of an individual, or the personal information was collected by us for an investigation relating to a breach of an agreement or a contravention of the laws of Canada or a province thereof.

If access to your personal information is refused, in whole or in part, we will provide you with the reasons for our refusal, the provision of applicable privacy legislation on which the refusal is based, and the contact information of the Privacy Officer who can answer your questions about the refusal. We will also inform you that you may ask for a review of our refusal in accordance with applicable privacy legislation.  

To submit a request to access your personal information or designate an authorized agent to make a request to access your personal information, please contact our Privacy Officer.

We make every reasonable effort to keep personal information as accurate, complete, current and relevant as necessary for the identified purposes, however, we do not routinely update personal information. Please contact our Privacy Officer if you would like to request an update to your personal information. If you so request, we will make every reasonable effort to correct any of your outdated personal information, or errors or omissions in your personal information, provided that such personal information is in our custody or control. Your request must be in writing, signed by you, and include sufficient detail to enable us to identify any personal information in our custody or control in relation to your request, including your name, contact details, membership number (where applicable), and the specifics of your request.

As soon as reasonably practical (but not later than thirty (30) days from our receipt of your request or within such additional time as required or permitted by law), we will either correct your personal information and, if applicable and reasonable to do so, send correction notifications to any third party to whom we disclosed the incorrect personal information, or we will decide not to correct the personal information. If we do not correct the personal information, we will annotate the personal information under our control to indicate that a correction was requested but not made.

We will inform you of the action that we have taken in response to your request for correction, that our Privacy Officer can answer your questions about your request for correction, and that you may ask for a review of the action taken in accordance with applicable privacy legislation.

If you have questions or concerns about this Privacy Policy, please contact our Privacy Officer at heather@dementiaassociation.ca.  

Last Update: 24 June 2020